[Vision2020] Michael J. Fox interview

[Pat Kraut]

OK...my two sons have Alports Syndrome! So What??




----- Original Message ----- 
From: "Andreas Schou" <ophite at gmail.com>
To: "Pat Kraut" <pkraut at moscow.com>
Cc: "vision2020" <vision2020 at moscow.com>
Sent: Tuesday, October 31, 2006 2:48 PM
Subject: Re: [Vision2020] Michael J. Fox interview


Pat --

I have recently had a great deal of experience with Parkinsons'
symptoms, largely because my family shares a deficiency in
dopaminergic neurons*. Fortunately, our condition is not progressive.
I've had the opportunity to see both the effects of (a) not taking
your drugs and (b) taking your drugs.

The former results in stiffening, freezing, tremors, and dystonia --
contraction of muscles, curling-under of toes, arms pulling back until
they look like a T-Rex's, and shaking. This is because your body lacks
enough dopamine.

The latter results in jerking, involuntary movements, twitching, and
low-frequency shaking. This is because your body is overdosing on
dopamine. This calms down after a while, as your body moves on to more
normal dopamine levels, but the effects of taking your drugs are just
as nasty, if not more, than not taking your drugs.

The latter was clearly what MJF was experience.

Pat, you're like a funnel for talking points -- picking right-wing
nonsense up from the ether, concentrating it to a single point, and
spewing it back out onto the Internet. You seem to have utterly no
concern for whether what you're saying is incorrect, idiotic, or
morally bankrupt.

-- ACS

* If you're interested, it's called Segawa's Disease, or
DOPA-responsive Dystonia

On 10/31/06, Pat Kraut <pkraut at moscow.com> wrote:
> I am very aware of the problems of a major illness...I just don't believe
> that the end justifies the means...as in embryonic cell research. And in
> what I read the belief is that the answer won't be in those cells anyway
at
> lease that's what I read in stuff from other countries where any research
is
> available. There is a lot of research happening and a lot of it is in
> Missouri at the state level where Fox tried to push a dem on people. And
it
> has been pushed by the republican in office and those in all the states
> where the AD has played know the truth. The radio programs were flooded
with
> citizens of those states after Fox appeared on their TV's.  For those who
do
> not read or listen to radio other than NPR Fox wrote a book himself after
> his appearance before congress wherein he said he didn't take his meds to
> put on a good show of the ravages of his illness. That's not right because
a
> lot of research and monies went into that medication and he should use
> it...ALL the time. For Saundra, J Ford and others on this site that want
to
> make any post a chance to attack the individual rather than stick to the
> substance it tells all of us much more about you...you have lost your
> argument when you believe you have to use that means for your end. These
> illness are a very complicated subject and for anyone to try to push us
into
> something so Dr Mengles is just not something I am willing to let happen.
I
> more than understand wanting to get the illness to just go away with the
> taking of just one more pill but it just isn't that easy for any illness.
In
> one of the Star Trek movies the crew is looking for someone in a hospital
> and as Bones goes down the hall he stops to talk to an old woman who tells
> him she is waiting for her dialysis. His line is "what is this the middle
> ages" and he give her a pill...just one pill! And sure enough she gets so
> much better the hospital personnel know it immediately. This is the pill I
> would like for my sons but it just isn't there yet and I am not willing to
> sacrifice people to help them. I have son on the kidney transplant list
> right now and I want you to just try Just Try to understand how hard it is
> to pray for him to get a new kidney. That means that some one some where
has
> lost their loved one! I just cannot be that person who wants so much to
save
> her child that she would take some one else's any where any time.
Understand
> Saundra...oh yes I understand. I watched my mother who was a paranoid
> schizophrenic and the effect of her medications on her body. I also how
they
> actually helped with her illness. I know about many illness and their
> mediations problems just how much more do you need to know that I am
> speaking from experience not just emotion nor from any 'programming' from
> any group.
>
>
>
>
> ----- Original Message -----
> From: "Saundra Lund" <sslund at adelphia.net>
> To: "'Pat Kraut'" <pkraut at moscow.com>; "'vision2020'"
> <vision2020 at moscow.com>
> Sent: Tuesday, October 31, 2006 9:04 AM
> Subject: RE: [Vision2020] Michael J. Fox interview
>
>
> Hi Pat,
>
> You wrote:
> "Did you read the book wherein Fox was the first to say that he had played
> with his meds to put on a good show?? People with Parkinson's were
incensed
> when they heard he did it! Rush didn't make it up...Fox did!"
>
> What are you talking about . . . what book?  Do you know ***anything***
> about Parkinson's???  Do you know what the medications can cause???
>
> Unfortunately, I have all too much experience with Parkinson's and I'm
> frankly shocked at your post.  Just keep feeding the the absolutely
> unfounded rumor mill all in the name of your GOP, Pat -- it tells us a
*lot*
> more about you than it does about Michael J. Fox.
>
>
> Saundra Lund
> Moscow, ID
>
> The only thing necessary for the triumph of evil is for good people to do
> nothing.
> - Edmund Burke
>
> ***** Original material contained herein is Copyright 2006, Saundra Lund.
> Do not copy, forward, excerpt, or reproduce outside the Vision 2020 forum
> without the express written permission of the author.*****
>
>
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